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Old 11-02-2012, 11:49 AM
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
Anacrusis Anacrusis is offline
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Join Date: Apr 2012
Posts: 478
10 yr Member
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Quote:
Originally Posted by alice md View Post
I was thinking-what if we add up all the stories of patients whose diagnosis was delayed for many years
......Mine is still being delayed, but if any of my information is useful for this project then I will be happy to supply it otherwise help out in a different way since I am not in the officially diagnosed category.


Dear Alice.....

This is a fantastic opportunity for people to contribute and help promote change on a different level than what is usually achieved on a forum.

A film (I think) might need more opportunities for´live´cooperative discussions in the preliminary stages.

The idea of a case series would work extremely well at this time with the ´virtual´world where so many here exchange information/ideas and their excellent descriptions.


Thank you!


Anacrusis

Last edited by Anacrusis; 11-03-2012 at 03:48 AM. Reason: info has already served its purpose!
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