Quote:
Originally Posted by alice md
I was thinking-what if we add up all the stories of patients whose diagnosis was delayed for many years
|
......Mine is
still being delayed, but if any of my information is useful for this project then I will be happy to supply it otherwise help out in a different way since I am not in the officially diagnosed category.
Dear Alice.....
This is a
fantastic opportunity for people to contribute and help promote change on a different level than what is usually achieved on a forum.
A film (I think) might need more opportunities for´
live´cooperative discussions in the preliminary stages.
The idea of a case series would work extremely well at this time with the ´
virtual´world where so many here exchange information/ideas and their excellent descriptions.
Thank you!
Anacrusis