Thanks kpRN for your many posts. I have been able to empathize more with you than any other stories I have read. I have idiopathic peripheral neuropathy since 2006. I worry that not only is it a forever condition without relief other than drugs, as well as it progressing. I am 55 years/male.

The reason I would like to reach out to all is my neurologist is supportive of me going to The Cleveland Clinic for further testing. But as the original post implied, is it worth it? I will have to pay out of pocket expenses and they do not seem to be receptive to utilize the testing I have already recently have had done.

The disease has robbed me of my active life and by dinner time I'm ready to take another drug, just so I will sleep and escape the torment.

I have been thru all the same drug you mention including now Lyrica and maximum does of Tramadol thus creating cognitive challenges.

I don’t mean to come off as negative and poor me, but I post this with the hope that there is help somewhere to be found.

If you had it to do over, was the trip to The Cleveland Clinic worth it?