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Member
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Join Date: Oct 2008
Location: England East Midlands Stamford
Posts: 146
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Member
Join Date: Oct 2008
Location: England East Midlands Stamford
Posts: 146
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Managing without any drugs
I wonder if anyone else can manage without any drugs
I've gone a year now with out any drugs I was on steroids 1st for a year then 6months width out then another 6months on but I'm coping quite well
Without any drugs what helped me was going to a Gym were I slowly improved my muscle strength and then using the treadmill I was able to improve my breathing problems breathing and swallowing unproved thou walking still was differcult I rest a lot but have good times in the morning and early afternoons
Found that I have brain fog this last year that scares me
Worse was being told that I don't have MG but have c.f.s.
I did find out that their was a research done on high level of calcium helping MG patients and with me having parathyroid maybe that explains why I'm able to do what I can
Worse part of having MG is not being believed that you have it
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