Thank you all for your thoughtful responses. I am so grateful for this community and clearly your experience speaks volumes. As many of you know, this process can be especially lonely and frustrating. My friends are frustrated that I am not better yet and if I'd only do more yoga, meditation, fill in the blank with said suggestion.....Ughhh, they think it is frustrating?! And trust me, I value all of those therapies but as of yet none of them have restored my eye functionality

The neuro did up my dose and gave me a lot of autonomy with respect to playing with my dosage but said not to exceed 180mg/day. Is this still low?

Per all of your suggestions, I am slated to see a neuro-opthamologist tomorrow. My area was enormously affected by Sandy so let's hope I can get there.

Thank you, again, for sharing your perspective and the support. It means so much.