Quote:
Originally Posted by tsi25
I also have a SCS implanted and had to have it redone as it was to high in my mid region instead of below my knee. It has been in for about a year and a half. It really only helps take the edge off and that is it. My RSD in my left foot, ankle and calf has now spread all the way up my leg. They have talked to me about doing a prialt pain pump. I am trying to see what it is going to look like(as I am a visual person). Since you have had yours in a while are you starting to see any long term side effects??? Any information would be greatly appreciate.
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Welcome!
I'm sorry to hear that your unit isn't workin up to it's potential. This has happened with a few of the other members (regarding too much stim in mid region). With some tweaking and/or revisions, some of them have been able to get rid of that unwanted stimulation in abdomen/stomach.
Lostmary hasn't posted in quite awhile, so I'm not sure if she will see this post.
Here are some posts from other pumpsters
Here is the testimony of Bobinjeffmo's pain pump:
http://neurotalk.psychcentral.com/post701979-14.html
Here are some post references, both good and bad, to hopefully give you a realistic array of experiences:
http://neurotalk.psychcentral.com/thread144925.html
http://neurotalk.psychcentral.com/sh...945#post841945
http://neurotalk.psychcentral.com/post778075-7.html
Another thing you can do is use the "Search" feature near the top of the page in the bar that runs across the screen (3rd option from right). Type in 'pain pump' and it will bring up prior posts and discussions on these.
Hope this helps!
Also, I'd like to invite you to come on down to the active posting from the whole crew. Right now, we are up in the 'Sticky' section, which is mostly information and polls. Once you exit out of this dialogue, you'll see an option down below to start a new thread of your own and you'll get tons of great feedback from many caring members.
It's great to have you! Hope you stick around.
Just holler if you have any questions ok!
Rae
