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Old 11-04-2012, 09:44 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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wow, can't believe how many of yall have similar symptoms.. and yes, the fact that I generally "Look" well makes it hard for others (esp drs) to understand how my body feels and works.. today it was warm here and my face drooped down so badly and vision just got worse too

As far as the driving goes.. yes i don't feel very confident when I drive anymore, as my vision is just so weird, night is definitely worse as well- the double vision is much more obvious with the lights.

Do any of yalls eye muscles feel sore ever? As far as typing goes.. when my symptoms get bad (like right now - 4 weeks out from my last IVIG- the longest time I have gone in a whole year! I have it tomorrow yay).. my fingertips get so floppy.. all of my muscles are weak, and fingertips are so floppy it does make it hard to type. Yall have floppy fingers??

This is all so weird, and yes it seems so hard for my friends to get it.. this forum is a life saver!
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