Quote:
Originally Posted by kimmyF
I had my Thymectomy in May of this year, I was taking 180 mg of Mestinon a day, I am now down to 60 mg a day I take 30 in the morning and 30 at supper, I have cut out my IVIG and I'm feeling great, I want to attempt going off Mestinon all together, but I don't want to crash and have my MG get worse, any suggestions? Or things to watch for as I cutback?
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I also had my thymectomy in May but I am on prediscone. Was up to 70 and now tapering down and currently on 30mg. I stopped taking mestinon months ago as I felt it made no difference to my symptoms. Obviously I'm not saying anyone should do that but my Neuro says its doesn't work for everyone and I guess I'm one of them. Not sure if that's a blessing or a curse! Would rather be off the steroids! Hoping that the thymectomy works. Good luck!