Jana, That's nice but I think you have me confused with the firefighters, police, national guard and everyone else who's helping out after that B#$$@ Sandy destroyed everything. They're the real heroes.

I'm also very sorry you've known 3 MGers who have died. Could it have been avoided or could they have been helped?

wild_cat, I thought of something else. Do you know your normal pulse? When chest wall muscles get weaker due to MG, your oxygen saturation (how much oxygen is getting to your tissues) goes down. Then the heart pumps faster in an attempt to get you more oxygen, thereby raising your pulse. So if your pulse is going higher just sitting around, that's the "poor man's/woman's" way to see if you are needing oxygen more than usual.

There are other reasons why a pulse goes up but, in this context, that's what happens to someone with MG whose breathing is getting worse.

Are you doing okay?

Annie

Good PDF, Jana!