I am so sad now. I have just been to an emergency appointment with a GP (not my regular one, he wasn't free) and they now have the report from the hospital, which basically says I should see a specialist in 'functional' symptoms. I cannot complete a sentence as I am so out of breath, and I told them if they didn't sort something out they could have a dead patient on their hands. I can't help being really upset by this and I have no idea what to do. I am waiting for them to ring me now.

One thing which confuses me is they say my neurological exam was normal, yet I cannot look to the right with my eyes or upwards. My eyes ache horribly and after a few seconds give out and close and my head drops, or else my right eye just refuses to look in that direction and rolls off upwards. I can't focus between one and object and another. I can't hold my arms out in front of me. I failed on nearly all of the strength resistance tests (can't hold fingers, wrists, ankles, arms or legs against any resistance). I became very breathless on standing and my voice very slurred and difficulty controlling the pitch. My left arm is so weak I failed to reach out and touch the neurologist's finger in the nose to finger test. Is this really a normal neurological exam? Are these really functional symptoms?

I had three neurological exams on Saturday and the last, and certainly my best, was with the neurologist. However, he is actually a brain surgeon and not actually a sepcialist in MG, and he says my symptoms don't fit an MG pattern. The GP now said there is somebody living with MG nearby and my symptoms aren't like hers. Are these Drs being really ignorant or am I truly the nutter they say I am?