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Old 11-06-2012, 11:47 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default Posting here: Erythema Nodosum

Howdy folks!

When dealing with my recent MS relapse, and still on steroids for that matter, I developed a HUGE outbreak of red, raised, hard bumps on my legs, from the knees down to the feet themselves. They were super painful, and for 3 weeks I was virtually unable to walk. The pain was obscene, swelling caused my ankles/feet to swell so badly I couldn't put on my shoes (had to wear my sandals, still painful, and not going to work in the Winter!).

So the E.N. is finally fading away, the spots that had been super inflamed are now dry to flaky skin.

I was sent for blood work, and I thought when I went "Hey, this is good, now they'll find something that explains why I have these spots!".

Wrong! Blood work came back 100% good, no inflammatory process could be detected.

Sigh... in another limbo. Has anyone else developed E.N.? I've found some folks on social media who have this (or had it at one time). Not pleasant!

(my first encounter with E.N. was mid-August of this year, and it was quite mild in comparison with the latest outbreak, which was unbearable)

I wanted to post on this board, as E.N. is completely (to my knowledge) unrelated with MS. It's a flare up, relapsing/remitting skin condition with an underlying cause (although a lot of people can never pin down what's causing it). New to me, I hope none of you have 'experienced' this, but if you have I'd greatly appreciate hearing your feedback/input. My GP had literally no advice to give about managing the condition.

Still waiting on a rheumy appointment...
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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