Hello Ali and Tink. Sorry I didn't see your posts till now. I'm not online much and rarely visit here. Are you both members on the facbook site? Just search CSF leaks on there and you should find it. It's very active and very useful for support and info. I will keep an eye out for both of you Also, Ali... I find your story interesting as they haven't found leak sites with me yet and my neuro mentioned about weak dura a few months ago. There are a few autoimmune issues in my family and I did wonder about the poss of something similar to Elhers Danlos with me. Sorry we have all had to meet this way but good to make your aquaintances, Deb.