Thread: stupid seizures
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Old 09-20-2006, 08:04 AM
mama z mama z is offline
Junior Member
 
Join Date: Aug 2006
Posts: 20
15 yr Member
mama z mama z is offline
Junior Member
 
Join Date: Aug 2006
Posts: 20
15 yr Member
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Thanks ladies.

We have thought about head phones but we weren't sure he'd tolerate them very well. Andrew has always had very sensative ears. We tried doing the therapeutic listening with the headphones and that didn't go well at all. And his hearing is and always has been amazing. Everybody has been amazed given the extent of his brain injury.

The seizures somehow seem to be more tone oriented. For example, we were at a very crowded reception. Lots of people, lots of talking. Andrew did absolutely fine through the whole reception until about 2/3 way through someone let a door close hard clear on the otherside of the room. Instant seizure.

We have started to wean Andrew off of his Clonazapam as of yesterday. It hasn't done any good at all. And last time we reduced the dose (end of July) he started having myoclonic jerks up to 3 in a minute all day for 2 days straight. So I'm not expecting the wean to go real well. Then we're going to try some Depakote.

So continues the rollar coaster.



Laura
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