Quote:
Originally Posted by jana
Ok, I hope I get this RIGHT.........
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I´m quite sure you did as great a job with this as you did with your recent
carotid sinus syncope suspected diagnosis!!!!!
Is it the barium swallow then that is the only swallowing test related to MG?
Yesterday for a change I was choking on balsamic vinegar fumes again´catching´in the lungs whilst eating a salad. How the heck can something like that cause such a disruption?! At lunch it was a strange feeling catching the eye of a colleague who understood more than I wanted him to whilst trying to disguise it all as a normal cough - but he knew. The only time I´ve had that before is whilst taking non-MG friendly medication and it stopped when I took it away. But now there is nothing left to´take away´.
I´ve had a´taster´of most sensations except the food and liquid back up the nose which sounds like a full time job - you seem to cope so well Jana....
By the way I used to have predictable weakness in diurnal fluctuations but now it´s heavy plank breathing four hours for some days and surprise choking here and there throughout the day most days and of course the never ending non-productive cough which has also now decided to be unpredictable. In our European health system you have to get your timing right as you get one shot at it and if symptoms don´t present at the appointment you basically go to the back of the line! If you get a decent doc abroad you still have to get your timing right. So maybe I´ll wait til it gets worse or maybe even better....
Quote:
Originally Posted by bny806
getting those numbers is really useful I think.. mentally too! 
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I think you may have 2 really good points there Ms bny806
PS wild_cat I do hope you are getting closer to some tests - as you need them asap NOW!