Hey Shelly, I'm new here too and have gotten only a few replies. But just scanning the New Posts helps me get through a bad day. I note you also have trigeminal neuralgia. I do too. Sometimes I think that this disease isn't known to a lot of people. Even some of my family memebers ignore me because they don't know what to do or say. Please don't give up! You need to do whatever is right for you. I wish you well. Janet