Thread: Neurogenic TOS
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Old 11-07-2012, 04:27 PM
Joshuamr Joshuamr is offline
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Join Date: Oct 2012
Location: New york
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10 yr Member
Joshuamr Joshuamr is offline
Junior Member
 
Join Date: Oct 2012
Location: New york
Posts: 39
10 yr Member
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Quote:
Originally Posted by Nottherightkindofdr View Post
I have problems gripping and with motor skills using my hand: buttoning buttons, zipping zippers, my handwriting is ridiculous. I never had pain in my hands - Just numbness and weakness. I had pain in my wrists, shoulders, neck, and arms though. I went to two neurologists who told me opposite things. They both agreed that I have TOS, but one told me to live on pain meds, and the other one told me I was atrophying, and I needed to do something (surgery.) I have neurogenic TOS, but my vascular surgeon told me I don't have any arterial or venous blockages, but if I continue to go untreated I could develop them.
I started this TOS journey in August (after I was misdiagnosed and misoperated on for carpal tunnel) I finally have peace knowing my plan of action. My advice: Do what you need to do until you find peace. Advice I was given and what works: go with your gut.
Yeah we definitely do have similar symptoms. Recently I noticed I have been dropping things a lot, and having trouble with any two finger grabbing. And as far as the pain goes that's never ending. Well I'm glad your on he right track and have a plan of action. My neurologist finally said it could be TOS but suggested I see a shoulder specialist to find out. It seems like the mystery syndrome that no one knows about. So I'm gonna see a vascular surgeon hopefully. Good luck and thanks for the reply.
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