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Originally Posted by Lesmom96
I am still newly diagnosed (6 weeks) so all of this is a learning curve for me and I know everyone responds differently with MG.
I really want and need to exercise but I know I need to be careful and progress slowly.
This all seem so crazy on how much it has changed my life.
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I'm newly diagnosed as well (August 29th) and a runner. It's definitely a hard transition, and while being careful and progressing at a pace that works for you is essential, don't despair. Everyone responds differently, but keep out hope that you will be able to exercise and do what you love.
I've been on Mestinon since diagnosis, as well as IVIg, and have been responding well. I still exhibit some symptoms, but I've been able to get back into running. In fact, I just ran my first half marathon since diagnosis this past weekend. And I'm running in a 200-mile relay race (I'm doing 16 miles) this coming weekend. Am I pushing myself? Yes. Is it a good idea? Maybe not. But I'll listen to my body as I go and make the best choices I can.
So, take it easy, but know that there is hope and that there's always a chance you can, smartly, get back doing what you love!
Adam