I would like to be able to get out of bed the moment I wake up everyday.
I would like to be able to call someone from the other room and not need a buzzer.
I would like to be able to walk a reasonable distance on my own.
I would like to be able to pick up something heavier than a lightweight cup.
I would like to be able to hold a book and read it.
I would like to be able to climb steps on my own, and more than 3 with assistance.
I would like to be able to give a lecture without having to prepare it with minimal talking, and having to use my respirator before and or after.
I would like to be able to go to a picnic with my family and sit on the grass like everyone else and not in a wheelchair.

I would like to be able to fly like superman....

Over the years I met quite a few neurologists who wanted to "cure" me. Once they realized that their " magic cures" don't work for me (and sometimes even do the exact opposite of what they should) they lost interest or even worse.

For them " no cure, does not mean no treatment" didn't exist.

They did nothing to help me find the way to live with my gradually worsening disabilities. In fact, they did quite a lot to make it as hard as possible for me to live with them.

This was until I met my current neurologist. For him every minor improvement was meaningful. He looked at the circumstances of my life, and not at those of some theoretical patient. He understood that what is right for me may not work for other patients and vice versa.

He was interested in my recovery, not in the disappearance of my symptoms.

No doubt that cure is the ultimate goal, and it is great when it can be achieved, but more times than not, it is unrealistic.