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Junior Member
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Join Date: Oct 2012
Location: Maine
Posts: 45
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Junior Member
Join Date: Oct 2012
Location: Maine
Posts: 45
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Thanks Maurice. I went through 5 plasmapheresis treatments right after being diagnosed on September 28th. I was really sliding down hill fast at that point and those treatments seemed to at least stop the slide. I still am taking 80mg of prednisone every other day and this is my 3rd day of cellcept and that dosage will continue to ramp up each week for the next 3 weeks. In December they hope to start lowering the prednisone dosage.
The mestinon is now 90mg with each meal and 180mg timespan at bedtime. I have regained 75% of my leg strength, the double vision comes and goes now with today being the best day I have had since diagnosis. My hands and arms still seem to be trailing behind and substantially weak. Still having a bit of trouble chewing at times as well.
Overall I have to say I am pleased with the results. The hardest part is figuring out how to take the cellcept on an empty stomach wait an hour and then take the mestinon and prednisone with food. I am thinking I may start keeping the cellcept on the bedside stand and take that as soon as I wake up. It will be even harder once I start adding the second dose of cellcept before dinner. I never was very good at keeping a schedule.
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