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Old 11-10-2012, 03:15 AM
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alice md alice md is offline
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Join Date: Sep 2009
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15 yr Member
alice md alice md is offline
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Join Date: Sep 2009
Posts: 884
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In my case however I hope I can prove you wrong and find normal again.
You will not prove me wrong.
I never thought or said that patients with MG can't have a full and long lasting remission. I don't think that what is written in the medical text-books is wrong. I just think that unfortunately it does not apply to all the patients.

What I said was that you have to give your body time to heal. This is the part which up to you.
This is also the place where I think that the lack of understanding of this illness by many neurologists can be so damaging.
No doubt that they have the best intentions when they encourage their patients to go back to their normal life as soon as possible, but I believe that for some this may be very counterproductive and have a negative effect on their chance to fully recover.

My husband is a marathon runner and one of my physicians was a marathon trainer. I have learned from both of them that a trained marathon runner never pushes himself beyond 70% of his maximal ability.

You also don't run a marathon every day.

I have seen marathon runners who were not properly trained and the significant difference between the way they run and their chance of getting into trouble as compared to those who are properly trained.

Those rules of thumb apply very well to MG.

I am sure that if you had a cardiorespiratory test prior to MG your VO2 max would have been very different than what it is now.

I am also sure that you gradually built up your endurance level and not started running the full 42 kilometers right away.

I am sure that you are aware of the fate of the first marathon runner.

http://www.2500marathonanniversary.com/history.aspx
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"Thanks for this!" says:
AnnieB3 (11-10-2012), StephC (11-10-2012)