I recently had a stroke of the optic nerve. My visual symptoms are practically identical to yours. Same eye, same quadrant visual lost... My retina specialist says that it will likely never get better but could get worse. Apparently once the optic nerve is damaged nothing short of advancements in stem cell research give us a chance to gain the vision back.
My doc said there have been cases where people have recovered but it's not likely to expect to recover.
I'm finding this sudden new change very difficult to adjust to. Emotionally, I try to be normal around others however I can feel that something is very wrong when trying to see. Doing what I do professionally has become a struggle... I don't know what the future holds but I'm scared for my inability to take care of my family...
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Originally Posted by Strhuntrss
Has anyone had a stroke of their optic nerve? My symptoms all started with floaters, vision loss and being diagnosed with optic neuritis. Periphrial loss in the right eye, hit and miss words and blurry vision prevent me from reading for very long. Left eye compensates but notice it is getting tired more often.
First opthlamologist did nothing and gave me the wait and see if it gets better. two weeks later eye got worse. Did all kinds of blood work. Nothing.
Seeked out a 2nd opinion opthamologist(was trained at the Cleveland Clinic). took one look and said I should have had IV steriods when it first happened. He then gave me oral steriods to get the swelling down, pupils were not reacting the way they should have, floaters and pain behind eye balls and when moved up and down. Swelling went down but sx never went away.
Went back to see first opthamologist, he ordered an MRI that could not be performed because of braces on teeth mared the test, what they could see was nothing( didn't get to the contrast cancelled test before they gave that to me). visual tests every month still wait as see.
A year later, decided to stay with the 2nd opthamologist. Seems to care about my eye and not as big of a practice. He performed numerous blood work, numerous visual tests again, another MRI (this time with contrast) looking for lesions to rule out possible MS because of sx i now am having that mimic MS. Some things have showed up.
Now I'm not so sure that they are going down the right path. I know medicine is not an exact science and Dr's don't know everything. But they can at least make us feel like we are not crazy. I am about to give up. Eye sight is not getting any better, the last MRI pretty much ruled out MS. Now I am back to square one.
In looking at the MRI report and looking up the medical jargon they use, I found that maybe my problem is that I had a stroke of the optic nerve.
Does anyone else have this condition? Looking for answers in hopefully the right place. Seeing the 2nd opinion opthamologist on Monday to discuss the results and where we go from here  |