Quote:
Originally Posted by Mark in Idaho
Trecker,
Welcome to NeuroTalk. If sounds like you have a son who is struggling with PCS. You have found a good place for support. Please feel free to introduce yourself and tell us how we can help you. There are years and decades of experience with PCS here.
My best to you.
Louann,
Sounds like your son qualifies seriously for state services. Please use the leverage you have to get him the care he needs. The responsibilities you are trying to take on are far more than you can handle. It sounds like the same tasks my mother had with my dad, except he was not so abusive during his last few years.
We are here to support you.
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I have went online and found a list and called about 24 facilities and they all say they will put him on their waiting list which seems to be a long one. He has been approved for a waiver from South Carolina Long Term Care which will give a little help with supplies, meals, and some adult day care. This may give me a little relief but as I understand it they just keep them a few hours a day and have some activities for them. This does not help him a whole lot. I think I will call adult protection as you suggested, that is about the last resort I have. I have talked to several social workers one from the long term care and the Head and spinal cord injuries of South Carolina (HASCI). I have told them both I want placement and not just home care. It is like you said earlier they do try to get you to keep them at home. They say they can not place him but all they can do is evaluate him that he needs a certain level of care which they have done as needing intermediate care. I still have to find a place that will accept him. In the mean time I can get the little help I mentioned above. I am also going to call his primary care Dr. he had taken him off of respidone that they had him on in the hospital and put him on an excelon patch which they use on people with Alzheimer to improve short term memory. It does not seem to help I have used it a month, I am thinking he did better with the respidone. Do you know anything about these two medicines?