Roger, I completely understand. Runners run. And MG is heartbreaking. I had many flares before I was diagnosed but mostly recovered and continued endurance training. This autumn, though, I was a spectator at my hometown marathon, and I have given up being ready for a December Marathon that I had selected for its cool weather. I am registered for Boston, which I have never run, and hope to be able to run it. I feel it is my responsibility to know when my goals truly are unrealistic but that it is the physician's responsibility to adjust his or her definition of normal health according to each patient, even if there is a chance of only partial success. It is difficult. I am sorry. Like you, I want to run.
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Originally Posted by rogerm213
I honestly can say I was disenheartened when reading the responses and came close to not coming back. While I know your responses are well intended I feel they dash the hopes and dreams of some who still think we can get beyond our diagnosises and get back to a somewhat normal lifestyle. As you both have said MG effects all of us differently and some people do go into remission and some can get back to life as they previously knew it.
I will continue to come back and I do value the information here. I do thank both of you for sharing your knowledge. In my case however I hope I can prove you wrong and find normal again.
I hope you can understand where I am coming from and see this from my point of view.
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