Quote:
Originally Posted by Rowejack
I was diagnosed with MG a little over three years ago .... My symptoms have been relatively mild for the first 2 years ...Drooping eyelid , speech problems and some minor breathing and swallowing problems My neuro put me on 60Mg of Mestinon ..four times a day but I was doing well on just three .
However, in the past six months i've found that stress now has strong effect on my well being ...Causes speech problems and fatigue ...even minor stress now brings on symptoms ... I've bumped back up to 4 Mestinon /day .
Recently my problems with fatigue have really slowed me ...Raking leaves for ten minutes causes me to almost drag myself back inside , head drooping and very out of breath .
My neuro has recommended prednisone and maybe accompanying cellcept .. I read the threads in here about prednisone and the side effects and I've told him ..no ..not yet ..I know everyone's symptoms are different , but this fatigue is getting me . Can't even walk halfway across a Mall.
Looking for those with similar fatigue problems and any reccomendations
Jack
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Had the same sort of thing happen to me this year. Had a thymoma 7 years ago and my symptoms have been mild up until this year only on Mestinon but it was not working. The symptoms have become much worse but the fatigue was overwhelming. I was put on Prednisone a month ago. It has helped the symptoms somewhat but it really helped the fatigue. I call it my necessary evil.I was so scared to take Prednisone because of the side affects. I was put on a low dose 15mg a day and have not had horrible side affects yet. I have had some agitation, hot flashes and palpitations and some minor muscle aches so far but I do know the longer I take it the worse it may get but I also know many who will tell you it is what keeps them going.. Right now I can function closer to normal. Hope you find your magic potion to get you back on track. remeber horror stories are the ones most likely to be posted online.