Quote:
Originally Posted by Rowejack
I was diagnosed with MG a little over three years ago .... My symptoms have been relatively mild for the first 2 years ...Drooping eyelid , speech problems and some minor breathing and swallowing problems My neuro put me on 60Mg of Mestinon ..four times a day but I was doing well on just three .
However, in the past six months i've found that stress now has strong effect on my well being ...Causes speech problems and fatigue ...even minor stress now brings on symptoms ... I've bumped back up to 4 Mestinon /day .
Recently my problems with fatigue have really slowed me ...Raking leaves for ten minutes causes me to almost drag myself back inside , head drooping and very out of breath .
My neuro has recommended prednisone and maybe accompanying cellcept .. I read the threads in here about prednisone and the side effects and I've told him ..no ..not yet ..I know everyone's symptoms are different , but this fatigue is getting me . Can't even walk halfway across a Mall.
Looking for those with similar fatigue problems and any reccomendations
Jack
|
Prednisone is very hard on your body. For me, I was diagnosed in 1981, had thymectomy then started Prednisone and Mestinon immediately. After 2 years and a change in doctors, they found that it actually made my weakness worse. I know everyone rolls their eyes when I say this, but I found nutritional supplements can help. Have you tried Choline and inositol? I take it daily after my 640 mg of Mestinon and 200mg of Imuran was not managing my weakness. Stress is hard - a fight with my husband puts me in bed for at least a day. A major incident (car accident, etc.) will incapacitate me for a week or more. I'm a type A personality so just telling me to control my stress doesn't work. At times, a grocery store trip is all I can do in a day. If you're like me, anything that may help is worth trying.