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Old 11-15-2012, 01:45 AM
SleepyD SleepyD is offline
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Join Date: Nov 2012
Location: We live on a farm (695acres) in Central Missouri
Posts: 4
10 yr Member
SleepyD SleepyD is offline
New Member
 
Join Date: Nov 2012
Location: We live on a farm (695acres) in Central Missouri
Posts: 4
10 yr Member
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Quote:
Originally Posted by Lily View Post
I don't know if anyone has had this type of problem, but I have had some nervous inflammation and connective tissue destruction that went up into my face. I'm not sure that doctors have seen anything like it, and my illness didn't even have a name outside of the Naturopath's diagnosis of Celiac Disease. It feels like my sinuses are leaking through my tissue. I can't expect anyone knows what I mean, but maybe someone else out there knows the devastation of connective tissue destruction. It takes so long to get into these specialists, and my illness is systemic, so it means lying here day after day just waiting. Know what I mean?
Please learn about relapsing Polychondritis (I have it and it sounds like you do too). It is apparently pretty rare but I think you will recognize your symptoms!
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