For a few weeks now, I have horrifying pains in my bladder..... it totally ruins my life and since I have a cathether (Supra pubis through my belly) I went to see my urologist and she examined the bladder through a scope, which was extremely painful, but she cannot find a cause for it...... sometimes pure blood goes through my cathether too...... it is ruining my life to have this (I can actually neither sit up nor lay down for an amount of time and I have even worser sleep patterns through that) and although I have RSD spread through my body I never had that much pain in my organs. I did have liverpains after they removed my galbladder but they are good handle with my painmeds.
I also noticed that the RSD is spreading to my head, having had my first migraine this week, having jawproblems and hairloss, which grows back real fast too........

I am wondering if anyone has any experience in this area and if maybe a nerve block could be the solution? I am already starting a diet that hurts the bladder as less as possible (since the cathether does damage the lining of the bladder), but am at loss what to do with these pains and how to handle them...... our house is a mess because hubby spends all his time trying to distract my attention by watching movies with me, reading with me, laying down half of the day...... he is at loss what else to do for me when the pain gets too high...... last night he sent me shopping on the internet for a CD I really wanted....... but it's hard on him that we hardly can go out now... although he keeps on telling me he likes it because of his age..... but I know he is hurting because of this..... and even though I know it's not my fault I feel guilty........

Any help would be appreciated.....

Love,
Mieke