Member
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
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Member
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
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Yes, cold weather does make it much worse, at least for me. I use more pain medication when I am cold, and I am very reluctant to go out at all. When I do go out I wear long underwear, sweatshirts, wool hat and mittens, and a heavy down full length coat. We have to keep the house at 72 and I still use electric blankets and a space heater. If I do get cold I shake and feel nauseous and a hot shower is the quickest way for me to warm up. It is positively reptilian.
This is a common complication of CMT ( hereditary neuropathy). My hands and the back of my thighs are my most susceptible spots. I have no sensation in my feet, but my husband will attest to their iciness.
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