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Old 11-16-2012, 02:32 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Quandry, If you can hardly breathe in or out, that's a dial 911 MG emergency. I'm sorry you didn't get the appropriate care last time. Do they realize that you could stop breathing and die? Good grief. They need to do an arterial blood gas. Also, they need to consult with pulmonology right away. They handle the breathing portion of an MG crisis! Neuros are NOT qualified to do that. I hope you'll get care soon.

bny, Will you please tell me your "real" name again? BTW, I don't do any of that "friending" stuff. I just don't have energy for things like that. I'm not even on Facebook.

Do you know which lab they sent your AChR antibody tests to? It sounds like a Mayo range. My first modulating was just slightly below normal. My second was positive. These tests do change. And since they are IgG antibody tests, yes, the IVIG can affect them. Just like a low IgA can affect a celiac disease antibody test.

I hope that helps.

Annie
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"Thanks for this!" says:
Quandry (11-16-2012)