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Old 11-16-2012, 11:06 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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B-R-E-A-T-H-E.

PTSD is something that needs addressing too. You can't "wish" your way out of it. There is a new "touch" therapy that works really well.

First, get your medical records! Don't guess at what those Ig results were! If you have an immunodeficiency, that needs to be looked at by a specialist. Possibly a geneticist.

It's hard to say about the AChR modulating test being affected so long after having IVIG. It's more important that you have the IVIG since you don't do well without it. Kind of silly to go off of it for a stupid test. Maybe your neuro could redo it in 6 months to see if it's gone up.

Staying hydrated and warm HELPS with the EMG, RNS and SFEMG. Geez, you need to really relax about this whole thing. And I do have PTSD from numerous doctoring debacles so I do get how doctoring can make you hyper just thinking about it. Being able to reassure yourself and stay calm is going to help you get through the test anyway. Do you meditate? Can you focus on something you love during the test?

Don't take Benadryl within 48 hours of the test. It does the opposite of Mestinon and could affect the test.

Gastritis can be from more than one cause. Did they check you for H-Pylori? Are you taking any antacids or acid blockers? Those can cause it too. Stomach acid is a good thing and as you age, you lose it. A lack of it can cause gastritis too. And the symptoms of not enough and too much stomach acid are so similar. Both of those conditions, gastritis and esophagitis, can open you up for cancer. So it is important to see a gastroenterologist in an attempt to figure that out. Or a primary doctor first.

I'm sure the tests will go great. It'll be what it'll be. You're already getting good care and that's half the battle.

Annie
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