A counselor can be the same as a psychiatrist, but that wasn't exactly what I meant. A psychologist, or priest, or just someone who is a friend and very good listener, who doesn't feel compelled to fix every problem (because they can't) but who can really be with you and support you in your grief.
What you are going through- a potentially deadly illness compounded by a painful neuropathic condition, is too much to handle on your own.

My husband is my only real confidant, and frankly he isn't too good at it sometimes. Men always want to either fix things or ignore them. This is okay because my condition is painful and progressive, but I am not in any danger. I probably should see a psychologist to help me cope with the losses and anxiety about the future, instead of expecting so much from him.

In your case I think it is much more urgent that you have someone to help you deal with the fear and grieving over the loss of control you are experiencing over your life. Even with scary diseases like cancer there is a ritual for it, support groups, a treatment protocol that everyone is somewhat familiar with, but what you have is rare and people just cannot know how lonely and frightening it is in the same way they would react to someone with cancer.

Just a wordy way of asking, do you feel heard and understood in your current situation, or would it be wise to talk to someone trained in grief counseling? If I were you I would feel scared and frustrated and need to vent.