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Originally Posted by cloverthistle
Thanks so much - you've all given me some much needed perspective. You guys are awesome!
Finz, that's a great point about my attitude to pain possibly being a problem in getting an accurate diagnosis. I tend to forget to mention any discomfort (some of which should probably be considered pain) unless I'm actually experiencing it when I see the doctor. I think I need to start keeping a record of what I feel so that I can give the doctor a correct description of what kinds of pain I've experienced.
I agree I should act as if it's RSD for now even if it may not be.
Re meds/blocks/etc - what kind of doctor should I see? Do I go back to my surgeon? I am not sure how experienced he is with this, so I guess I should find out. Is there a particular type of specialist I should seek a referral to?
I wear compression socks most days to help manage swelling - is that still ok if I have RSD?
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When my surgeon felt I had CRPS he referred me to a pain management specialist that was familiar with the condition. She treated me and referred me on to an anesthesiologist who specializes in crps.
Nerve blocks are usual 1st course of treatment. Caution with PT is for not over doing it if it is crps as that can make the condition worse. I was given PT in the pool, and now do self PT, gentle ROM etc.
Your injury sounds as though it was pretty extensive, even without the crps possibility you will have to do some rehab to regain strength and flexibility.
Wishing you well, and hope that you do not have crps, or if you do, that they can get it under control FAST! The best chance for remission is EARLY in the game.
Aloha,
Jenny