Thread: Remission
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Old 11-20-2012, 01:29 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hey, Alan. There are basically two kinds of remission. There is drug-induced remission, where you are still on drugs with no MG symptoms. Then there is drug-free remission, where you aren't on any drugs and have no MG symptoms.

Then there are "grades" of having MG, where you can have anywhere from mild to severe symptoms. See Table 1 in this article. And those symptoms can fluctuate day to day, hour to hour. I know, it's beyond frustrating!

http://ats.ctsnetjournals.org/cgi/content/full/70/1/327

http://www.aerzteblatt.de/pdf/DI/104/7/a420e.pdf

I've taken to filling out the Quality of Life (QOL) survey for my neurologist at our appts. It tells him how I've been doing most recently or in general. Click on the PDF file to download a copy.

http://www.myasthenia.org/Livingwith...ityofLife.aspx

I hope that helps. Everyone who has MG is different, as I'm sure you know, so it's more important what your particular progress is.

I've stopped trying to figure MG out. I just go with the flow and adapt my day accordingly. It's not fun but what choice do we have?!


Annie
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"Thanks for this!" says:
Alan53 (11-20-2012), Anacrusis (11-28-2012), jillipoo (01-06-2013), wild_cat (11-20-2012)