Thanks
Steph, Alice, Heat Intolerant, wild_cat and
Annie 
You know,
wild_cat, it was much easier to follow my instincts when symptoms were more predictable, progressive and physically dramatic. I seem to have lost that same instinctual ability the minute resolution began appearing regularly between all the fluctuations…
(
I do have a good instinct about your upcoming appointment though )
Thank you for that very specific link
Heat Intolerant. It must have been a pretty traumatic experience for you to need respiratory assistance whilst on board an aircraft. I can understand you not wanting to have to do anything that might bring back that experience again.
(If someone ever wanted me to inherit a rather large sum of money, I would donate a large part to MG research and save some for you to take a luxury
cruise instead
)
Annie, thank you for sharing your knowledge and all the experiences you have had on board.
If what I had was anything to do with diminished oxygen reserves then this would be even scarier than I originally had thought. I
did register warning signals but in fact felt
invincible and quite
fearless even during the worst moments.
Anyway, I presume the pressing on the lungs must also be to do with feeling the higher pressure from outside the diaphragm during flight descent. I´ve never had that physiological sensation before MG type weakness began.
I
did end up buying an oximeter and used it on board for the return journey. The levels fluctuated quite a bit (between 8 digits) so I´m not quite sure if I used it correctly or even bought the right one.
But what I
am really quite sure about now, is the following –
- Something is not quite right if you are having any type of respiratory problems in-flight and post flight on modern commercial aircrafts
- Time is of essence especially at higher altitudes
- Even a slightly altered state of consciousness can lead to a false sense of security and well being altering symptom perception, judgement and response for appropriate action.
Have a wonderful day,
Anacrusis