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Old 11-20-2012, 05:35 PM
zebus zebus is offline
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Join Date: Dec 2011
Posts: 18
10 yr Member
zebus zebus is offline
Junior Member
 
Join Date: Dec 2011
Posts: 18
10 yr Member
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Quote:
Originally Posted by NerPain4 View Post
Hi,
what is HNPP?

P.S. I think you might need to ask a hand specialist not a vascular surgeon. There is someone like that in the Bay Area.
HNPP is a disease where your nerves are way more sensitive to pressure and damage than normal. Basically in someone with HNPP, where problems like TOS and carpal tunnel are a problem of putting too much pressure on nerves from enlarged muscles and tendons, HNPP is a problem where the nerves can't handle the pressure because they are more sensitive. Basically their nerves get entrapped very easily.

Like I definitely have an entrapment at the anatomical site of TOS, but like I said I also have other nerve problems as well to the point I question if my TOS isn't due to some underlying nerve issue like HNPP. I'm tempted by surgery because it's about to get bad to the point that I can't work which isn't an option and my parents health insurance is up on me in like a month, but I also don't want to do anything I'll regret..

So I was just curious to see if a person with an issue like that could have TOS with a normal thoracic outlet, or if that is impossible and TOS could only be caused by conventional means like RSI. There are tons of studies out there showing how things like diabets, hypothyroid, HNPP, and more can cause common entrapment like carpal and cubital tunnel, but I can't find anything in regard to TOS.

Basically I was healthy until I was 25 then within months of each other I developed symptoms of TOS, in addition to numbness in my other thigh (meralgia parethesica, another entrapment like TOS/carpal tunnel but in thigh), as well as burning and numbness in the bottom of my feet when standing (tarsal tunnel), and then a few weeks ago I started having symptoms of cubital tunnel in my right arm.. yea that's what I've been dealing with. Only reason my symptoms don't match up with HNPP is because I don't have carpal tunnel which is found in basically all HNPP patients due to it being the easiest nerve entrapment to get antomically.
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