Hello, I just saw your post for the sunburn syndrome. I was diagoised with this at the John Hopkins . I never heard of such a thing in my life. I have severe skin burning especially on my face and chest. I get no relief at all. I was wondering how you are doing with this syndrome and if it effects your different senses at all. It has been years since I had this diagnosis but it would come and go. Right now it is constant and I have no idea why.... I am about at the end of my rope with this because it is constant...

How are you doing with all of this.. ? Would love to hear from you.... thanks, Pat