Hello Banburycross,

Welcome to our community.

That waiting game has got to be one of the hardest things to endure; especially when symptoms are ongoing and it seems that nothing is being done about it.

For what it's worth, many excellent diagnosticians take an opposite approach to the urgency of "Don't just stand there...do something!" and instead think, "Don't just do something...stand there." This means that that they are evaluating the whole picture rather than jumping at the first or most obvious symptom; and that often ends up being the best approach in that it may avoid an incorrect or ineffective treatment plan.

Please do keep us up to date on how things are going. Sometimes just sharing what we are going through with others who truly do understand the frustration that this disease can cause is a tremendous help in itself .

With love, Erika