Hi Jenny. My neuro dxed me, the RSD is very visable, so thats how he knew i had it. And yes the RSD was caused by TOS surgery. so theres nothing that can be done about it now on behalf of the tos. He will be able to see my records since its in the computer system of all my drs. I havent had a PM for RSD yet. I havent seen a PM for 4yrs which was him. Other then meds, ive had no treatments for it yet. Now im ready, so now im ready to go in and give him as much info as possible and see if we can get anywhere.
Quote:
Originally Posted by jpcrps
tos8,
If I were you I would do my research and bring some informational material to leave with him. TOS has relationship to RSD/CRPS in that TOS can be instigator for same. I think I read something about this on Hooshmand's web site.
Also, if you have the records from prior doctors who have given RSD diagnosis these are crucial.
Why are you changing PMs - or have you had a PM for RSD? When/how were you diagnosed and what treatments have you had? All of this info will be helpful to your new PM not to throw you in the TOS "bucket".
I am aware of lidocaine and ketamine infusions for crps/rsd - protocols are readily available from web search - check rsd.org
Best of luck to you with new PM.
Love,
Jenny
|