Unfortunately I think it is traveling that has made my symptoms so much worse. As it is I am reliant on my parents to travel with me, which means them taking time off work. I can't fly which makes the journey itself over complicated as I live in a remote area. I find even going in a car for a few minutes can make my symptoms very much worse and it can take me days if not weeks to recover.
I have my respiratory tests on the same day as my neuro appointment so hopefully that will give some answers. If not then I have the plan b as you say!