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Originally Posted by Susanne C.
Dr. Enrica Arnaudo is in Delaware at Christiana if that isn't too far for you. I think very highly of her and she is a neuromuscular specialist.
If Hopkins couldn't point you in the right direction, I really don't know what to recommend, since they are the premier facility.This must be terribly frustrating.
Difficulty going up stairs is one of my primary problems, along with pain, stiffness, and weakness due to muscle wasting, but I have hereditary neuropathy. Lifting my legs gets harder all the time.
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Hi Susanne,
What type of Hereditary neuropathy do you have? I had come to the conclusion that my neuropathy was idiopathic and that was it. However, from everything I've read, small fiber neuropathy causes pain but not muscle weakness. That is the reason I am considering going to a neuromuscular doctor. When I went to Hopkins I did not go to their neuropathy specialist. I went to a neurologist and they thought is could possibly be Sjogrens and sent me to the Sjogrens clinic.
Thanks!
Hopeful