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Senior Member
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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Senior Member
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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The "war" for a few days after IVIG is normal. Not sure what they are treating you for though, as it didn't sound like Sjogren's if you have negative labs and a negative biopsy. Eye tests (Schirmer's) just indicate dry eyes, not the cause and there are a zillion things that can cause dry eyes.
I would explore a more thorough work up at JH or just continue the IVIG for a while to see if it helps. It doesn't sound like you've done but a few months, so maybe a longer trial would be beneficial.
If your rheumy thinks this is autoimmune, he needs to try and narrow it down to which disease (because I doubt it Sjogren's). Maybe seeing a rheumy at JH would be a possible path.
Either way, good luck.
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