Hello!

One small piece of advice I learned the hard way when going to see doctors.
I did not have the most concerned, personable doctors. Usually during the assessment they will ask about your daily routine to see how much you can do.

Because of the headaches and fatigue I could not do much and would always start off along the lines of "Well, I always have a headache and I get up and do the dishes and then have to rest after 10 minutes.. blah blah blah". Their eyes usually glass over.

Then I learned to say " I do as much as I can do each day! ... until the headaches becomes severe enough or the fatigue". Even if that is only half an hour or so.

These small things make a difference to doctors. I noticed that their attitude toward me changed. It is discouraging to hear people posting that their doctor's have given them these wrong diagnoses that hurt their ability to get help with their PCS.

This may seem silly but I hope it helped a little.