[QUOTE=Banburycross;933634]
Quote:
Originally Posted by LisaLisa37
Hello all. I am new to this thread and looking for advice and support for what I have been going through. After 5 years of symptoms of ms I am still without a dx but every time i go in with a new symptom am told it sounds like ms. At this point I am not very functional at all and with every attack I get new symptoms and am desperate for help. The depression has started to get pretty bad over the past two
Just wanted to say hi. I'm playing the waiting game.. I think one of the hardest things is not knowing what to do.or at leat I feel better if I have some plan of action. I actually snapped over a month ago :-) froze mentally, my old acupuncturist got me a little stable. So I can only offer to be here if you just need a sympathetic shoulder. I have new symptoms popping up all the time, some last only few mos, some progressive. My neuros suggested I play lots of video games.. So if u like we could hook up on some computer games. Kinda kills boredom and strengthen cognitive skills. Hang in there, most people think waiting is the hardest part. Have they ruled anything out yet for you?
Warm regards, katherine
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Hello Katherine. I too have no plan of action at this point and think that is making depression worse. I have always been pretty active and now cannot even do some simple yoga. I have a list of new symptoms that have come over the last 6 months- more than any over the last 3 (severe joint & nerve pain, numbness & weakness of legs, burning hands & feet, coordination/balance issues, blurry vision, fatigue, tremors of hands & head, muscle spasms & cramping). I cannot work for the past 3 years due to continued falls, i have not driven in 8 months, and most of my household chores are now being done by others. My drs are pretty much just treating symptoms with medication (gabapentin, cymbalta, baclofen, & low dose of oxycodone) and redoing tests already done (lumbar mri to check for pinched nerve twice, vision test twice, blood test checking for Lyme, hepatitis, & HIV, EEG for sleep issues, and next week I get to have my second emg even though the first showed nothing abnormal) My new neuro said I don't have ms based on my brain mri from 5 years ago when my vision and balance issues started. I have an appt with my primary doc next week also and am planning on asking to be taken off meds. They are not helping me- seems pointless. I'm desperate for help but at the same time am so frustrated with it all I don't want to go back. Every time a new symptom comes I have started going to urgent care clinic (3 times in past month) and each dr looked over letter I bring with all my symptoms, diagnosis, tests done & what I do on my own and all said they would speak with my primary about testing for ms so I guess we will see next week! Sorry for the long-winded response! On a positive note I do play online games- I love any puzzle, word or trivia games. What do you play?
Warmest Regards,
Lisa