Quote:
Originally Posted by en bloc
The "war" for a few days after IVIG is normal. Not sure what they are treating you for though, as it didn't sound like Sjogren's if you have negative labs and a negative biopsy. Eye tests (Schirmer's) just indicate dry eyes, not the cause and there are a zillion things that can cause dry eyes.
I would explore a more thorough work up at JH or just continue the IVIG for a while to see if it helps. It doesn't sound like you've done but a few months, so maybe a longer trial would be beneficial.
If your rheumy thinks this is autoimmune, he needs to try and narrow it down to which disease (because I doubt it Sjogren's). Maybe seeing a rheumy at JH would be a possible path.
Either way, good luck.
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Hi en bloc, I do not believe it to be Sjogrens either. I thought the same thing about the Schimers test. I do really like my rheumo but I think he feels I have already had so many test done before I went to him that he hasn't tried to look for much. All my antibodies come back normal so far but they say that doesn't matter it they may eventually. They are giving me IVIG for the SFN which is idiopathic.
Thanks,
Hopeful
