Quote:
Originally Posted by hopeful
Hi en bloc, I do not believe it to be Sjogrens either. I thought the same thing about the Schimers test. I do really like my rheumo but I think he feels I have already had so many test done before I went to him that he hasn't tried to look for much. All my antibodies come back normal so far but they say that doesn't matter it they may eventually. They are giving me IVIG for the SFN which is idiopathic.
Thanks,
Hopeful  |
You were told correctly...that blood tests can be negative yet still have the AI disease. About 40% are sero-negative for Sjogren's...and sometimes they never turn positive. Mine have always been negative, yet my biopsy show Sjogren's at end stage.
The biopsy will show lymphocytes etc, if there is Sjogren's disease activity.
I'd say give it some more time with the IVIG if you think it's helping at all. The first few day can be tough after infusion. I always had that even 9 years later...but the benefit after those few days was worth it.