The antibody test came back negative and the neuro diagnosed me with optic neuritis and put me on an anti-inflammatory. My eye felt better and it stopped dropping for a while. He did not do the MUSK antibody test. After the prescription ran out, all the funny sensations and quivering lid came back again.

I called my GP and asked to go to an optic neurologist. I had the appointment today. He did some test and found my right eye had a larger pupil dilation and did not respond well to looking up and down. He said he thought I have MG. Finally, some one who listens. He is doing the MUSK test and the SFEmG. I will have a bit of a wait for the SFEmG.

I have been feeling better with the cold weather, but I had a scary episode last week where I could hardly move my legs, it lasted only a day.

Alice, why did the anti-inflammatory help my eye?

ALso, does anyone else get the quivering of the eyelids besides the droopiness? It looks a little freaky when they start to quiver and my field of vision starts to vibrate.

thanks
kathie