I don't know if THIS might be a factor.................

My MG doc also works at the MDA clinic AND treats ALS patients. I LOVE this doc -- he has been mighty kind to me.

BUT, if I "compare" myself to the other non-MG patients he sees, I would have to admit that my problems/symptoms seem "mild". I have sat in his waiting room...........other patients in wheelchairs, with walkers, hooked up to oxygen, not able to hold their heads up.........makes ME count my blessings! I REMIND myself all the time -- MGers are probably the most "normal" patients my doc sees.

My headache neuro sees a LOT of stroke and MS patients. In comparison, I probably look/seem pretty healthy to him, too.

When someone talks about "normal" -- I AM able to walk, feed myself, dress myself, breathe "regular" air, sleep in a regular bed....actions that MS, MD, ALS often don't allow. Perhaps a doctor's definition of living a "normal life" considers these things.