I don't think I would. Definitely not a rare variant of it, which is hard to diagnose and treat. Not one which involves recurrent episodes of respiratory failure, which are repeatedly ignored until you nearly die. Not one which is basically met with disbelief. Not one which requires consulting numerous physicians and scientists around the world until you get the kind of care you require. Not one in which you are sent home to die. Not one in which you are left to fend for yourself for nearly a year in which you have nearly daily struggles to stay alive...
But, as I was not given that choice, I just have to make the best of the cards I was dealt. I am definitely not going to feel sorry for myself, nor stop having compassion for others.