Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Jana,
Gastroparesis - I have it intermittently. At the moment I am only able to eat one meal a day because my tum still feels full from the day before. I throw up food that is 9 - 24 hours old. Thankfully I havent got to the vomiting stage again yet but that will come. Then I eat just 6 ritz crackers a day and feel dreadful. Although the weightloss is great as Im on the heavy side.
Gastroparesis can be part of something called dysautonomia (basically a problem with your autonomic nervous system). The autonomic nervous system control all the things your body does without thinking so heart rate, body temperature, breathing rate, blood pressure, digestion.
I bring this up (really no pun intended lol!) as autoimmune diseases ( like MG) are one of the causes of dysautonomia along with ehlers danlos syndrome.
Ive spoken before on this subject and I know a few of you have noticed that your blood pressure readings are becoming low etc. Or you have noticed that on standing your heart rate goes nuts.
I really believe that dysautonomia needs more recognition in the autoimmune disease community. I do believe many of you are suffering with additional issues along with the MG.
Low blood pressure can cause fatigue, excessive thirst, brain fog, nausea and a whole host of other symptoms. That you could be suffering with on top of MG. Simple things like increased fluid intake and additional salt ( I know everyone thinks salt is bad. Believe me without my salt tablets I would rarely be conscious!)
If your interested there is a great website just google Dinet or POTS place for more info.
I hope this helps
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is . .
Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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