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Old 11-28-2012, 02:34 PM
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Join Date: Apr 2009
Location: Tenn
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jana jana is offline
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Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
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Quote:
Originally Posted by bny806 View Post
They did have me on my side for the endoscopy/colonoscopy though, which i'm sure is standard...
Oh, this is GOOD to know!! Some things you just can't research on the internet -- first-hand accounts are BEST!

Aseptic meningitis -- worst headache(s) I've ever had! And I have bad migraines.

From what I've heard, MOST people don't have a problem with plasmapheresis (PEX). I was the oddball -- BP bottoming out. The central line was NOT fun -- tubes in your neck and stitches holding the contraption in place. I was soooooo glad to get that thing removed! But, if given a choice, in an emergency I'd rather do PEX than IVIG. The aching, rashes, and general discomfort after IVIG -- like having the flu for a month!
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