Erin- so do you feel that IVIG used to work better than it does after youve been on it a while??
The first several infusions it was AMAZING!!!!! I hadn't been able to move my face or smile for months and months.. and after that 2nd infusion I don't think I stopped smiling for weeks! I RAN around with my kids.. i felt 100% normal.. but since then I have never felt as good,. it DOES still work for sure.. and I feel it, but never ever like those first several times.. is that normal?
I am always wondering what I can do to get back to that normal- it was great!!!